Confidentiality and Ethical Issues in the Wider Usage of Clinical and Administrative Data
Organiser
Hershbinder Mann, University of Essex (hmann@essex.ac.uk)
Date and Location
25 May 2005, iLab, Constable Building, University of Essex.
Summary
Health service providers and researchers are increasingly interested in acquiring and joining data sources in order to get a more complete picture of service needs and social phenomena. This opens new challenges regarding patient confidentiality, data security (e.g. when transferred on a network) and secondary use of data.
The workshop used Learning Disabilities as an exemplar with the aim of engaging all parties that are interested in identifying and overcoming obstacles to the service, policy and research usage of joined administrative and clinical data while protecting confidentiality and citizens’ rights.
Agenda Setting Report
Download the Agenda Setting Report for this workshop here.
Programme
Introduction (168 kb)
Simon Musgrave, University of Essex
On Learning Disabilities
Prof Tony Holland, University of Cambridge
The Clinical e-Science Framework (CLEF) (149 kb)
Peter Singleton, Cambridge Health Informatics Ltd
iLab/Whiteboard Sessions: Why are data not shared more easily? Themes and issues
Confidentiality and Sharing Data: Technical obstacles and concerns (93 kb)
Dr Udo Kruschwitz, University of Essex
On Confidentiality (78 kb)
Dr Mark Elliot, University of Manchester
Use of Primary and Secondary Data in Learning Disability Research
Prof Eric Emerson, Institute for Health Research, University of Lancaster
iLab/Whiteboard Sessions: Technical and organisational issues with regard to sharing data
Closing address
Simon Musgrave, University of Essex